Day 11

Today's quick update...Evie's bilirubin levels were great. No lights in her future, thank the Lord! They continue to ween her off the humidity in her isolette. Today was around 55%. She is really peeling and what is revealed underneath is beautiful soft baby skin. She has been getting regular "baths" from her nurses and this really seems to help. We got her out twice today to feed her. Her first trip out she drank more than the second. She just gets so cozy and would apparently rather snuggle than eat when we hold her. That's okay. She eats well from the bottle and she continues to get breast milk which is the most important thing right now.

It seems Evie is following in her sister's footsteps in more ways than one...she has an uncanny ability to wait until just the moment when she is passed off to Ford and then decides to poop. Just the way Amelia did during her NICU stay. But even better than that, she is totally entranced with him, when she is awake that is. She just stares at him and listens intently to his voice. Just the way Amelia did. Looks like we have two Daddy's girls.

Her NICU doctor talked to Amelia's pediatric dermatologist, Dr. Smith, at Vanderbilt Children's Hospital today. He didn't have much insight other than concurring that Evie's progress and membrane sounds a lot like Amelia's. He assured Dr. Gewolb that her course of treatment is exactly what he would recommend and told him to rely on the parents for information and insight regarding her care. It's unanimous, according to all of Evie's doctors nurses, even the geneticist, we know more than they do. I have a hard time deciding if that fact is comforting or distressing. The truth is only God has the answers, and Evie. Onward.

Keep praying.